Introduction to Desmoid Tumors – Hack4RARE – Team Building

MoCo Makers, Captial Area BioSpace, and Rockville Science Center have partnered to put a team together for the 2021 Hack4RARE event – targeting rare genetic conditions. This event is is put on by MIT Hacking Medicine and the Children’s Tumor Foundation.

At this talk we will introduce the science behind Desmoid Tumors, and the medical mystery of someone with this condition.

A previous Hack4RARE talk involved a patient with Desmoid Tumors that is willing to share medical information. See this past video here –

We intend to pick a hard problem and solve it, as a team. We are also happy to support you, if you are interested in doing a solo-project or a break-out team.

Learn more about the competition here:!Synapse:syn25551331/wiki/609856

Hack4Rare also has a Slack channel you can join here:

Contact Matt at to get on our private Slack channel.

Also, Hack4Rare is offering complimentary access to the NF Conference: running June 14-16th
Using this code: 21HACK

In June we will do team-building exercises, and introduce some of the science behind each of the four possible tracks for the competition. In July we will focus on productive work to solve one of the problems in a competition area. The four tracks possible in this competition are:

1. Neurofibromatosis (NF1, NF2, schwannomatosis)
2. Desmoid Tumors, a very rare neoplasm that develops from fibroblasts
3. PTEN Hamartoma Tumor Syndrome (PHTS)
4. RASopathies (Cardio-facio cutaneous CFC, Costello CS, Noonan NS)

I hope you will join us for this event. Be aware that in July we will switch from educational events to working-sessions only.

Introduction to Desmoid Tumors
Thursday, June 17 · 7:30 – 9:30pm
Google Meet joining info
Video call link: